Waking up on November 1st is literally like walking through a door from Halloweentown to Christmastown
What’s this? What’s this? There’s décor everywhere. What’s this? There’s carols in the air. What’s this? I can’t believe my eyes it’s just November come on folks I mean I swear. What’s this?
I FREAKING READ IT IN JACKS VOICE
I FUCKING SANG IT
Good day sunshine…
1.) The girl practiced safe sex and used condoms. SMART. AS. FUCK.
2.) I’ve seen this reblogged with notes calling her a “whore” and a “skank”. Fuck that noise. Over half the girls on tumblr will, or have, sucked the dick of a guy they just met, only hung out with a few times, or barely know, and then stress because he hasn’t called them back or he’s treating them like shit. Meanwhile the same girls go to work at a minimum wage job where they don’t even make $920 in 3 months, much less a day.
Good for this chick. She’s on her hustle and I ain’t mad at her. Make that money, girl!
you go girl
suck them dicks
achieve your dreams
are we going to ignore that these guys were willing to pay $460 just to have pleasure? i might not know a lot about how this business goes down but dayum she must have done a good job
On May 28th, my sister, Edna, turned 31.
Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing.
Edna and “Cookie.” I think she was trying to play it cool.
My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver.
That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.)
ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.
May 16, 2014. I wanted a picture. Edna wanted breakfast.
In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33.
Us with mom before she died. (Obviously.)
As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome.
Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome.
In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street - NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners.
Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.”
Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this:
YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS!
But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story.
Edna refusing to go inside.
These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless.
For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.)
Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below.
But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry.
By the way, we were raised by our grandma. Edna and her were very close.
She’s dead, too. Surprise.
She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna.
So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs - I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”)
But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].”
He was one of the two caseworkers that contributed to the report I mentioned above, which also included this:
So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!
Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them.
I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.
Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed.
Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.
That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding.
I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled.
This made me cry
STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.
This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit
They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.
I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.
I used to work for Easter Seals at an outpatient adult mental health site. The need for services and assistance for people with disabilities is out of this world, and some of the “care” available is ridiculous. I worked in an Internal Medicine clinic there providing direct patient care to folks who hadn’t seen doctors in ages. I spoke with people struggling to get disability benefits, struggling to afford medications. I spoke with people whose families have just left them to make it work on their own. People who live in AFC (Adult Foster Care) homes with staff who couldn’t give 2 f*cks about them (and that’s not ALL AFC homes/staff, but I encountered some b*tches I was ready to meet out in the parking lot if you know what I mean). The problem is that people with disabilities aren’t often enough seen as actual people. Ms Edna is a REAL f*cking person and she has every right to lead a comfortable, happy life. She’s a human being!
Jeanie, I salute you. I know what you’re doing is not easy but I commend you for doing it. And not only for doing it but for raising awareness. People have no idea what challenges families like yours face, challenges that can be improved if the government started giving a sh*t about the right things. Bless you and your amazing sister, Edna.
Important Things About the Ebola Outbreak
- You’re not hearing enough about it because it’s happening in Africa. Plain and simple. Western Media (of which I was once a naive member) does not consider the deaths of non-whites and non-Westerners as important, so while this disease kills, it isn’t killing the right people to get enough attention.
- With that said, officials have made it clear that they think there’s no chance the disease could spread outside of Africa, and definitely not to the United States.
- That’s bullshit, in my opinion. I’ve spent a lot of time researching disease transmission, viruses, etc., both professionally and in my spare time. It may not spread, but they can’t know that at this stage. It’s the largest outbreak of Ebola EVER. There are already hundreds dead, and the number is growing.
- "Ebola virus disease (formerly known as Ebola haemorrhagic fever) is a severe, often fatal illness, with a case fatality rate of up to 90%. It is one of the world’s most virulent diseases.The infection is transmitted by direct contact with the blood, body fluids and tissues of infected animals or people. Severely ill patients require intensive supportive care. During an outbreak, those at higher risk of infection are health workers, family members and others in close contact with sick people and deceased patients." [x]
- There is no cure and no vaccine, and most people are not educated on protecting themselves from this disease.
- Don’t freak out, but we should all be paying attention.
Let me note that 2 American doctors have become infected from the virus. One of the doctor’s family members (Wife and children) was living with him and left a week prior to him showing symptoms of the virus. Supposedly a person cannot contract the virus if the infected person does not show symptoms. However, the Ebola virus has an incubation period of 2-21 days.
Continue to look for updates about the spread of the virus.
My favorite tweets of audiences being shitty Part 2/?
*if you see Broadway actors post similar tweets/posts plz send to me so I can add it in the future!! I only follow so many people”
Here’s Part 1! (x)
All of these are great except for the breastfeeding thing. Like wtf, you’re in a dark theater and you can do it really discreetly. It’s not a glowing screen coming up, it literally does not effect anyone else. So women should just have to leave when they’re babies are hungry? Because if they were feeding them with a bottle you probably wouldn’t care